Hometown: Findlay, OH
Age on Race Day: 16
Diagnosis: Heart Transplant
In June 2019, Ryley, was diagnosed with Hypertrophic Cardiomyopathy and Wolff-Parkinson-White (WPW) syndrome. WPW syndrome is a condition that affects the heart's electrical system and leads to periods of rapid heart rate. He underwent two ablations following his diagnosis. After additional genetic testing, he was found to have a rare gene mutation called Prkag2. This gene mutation causes Ryley’s heart to store glycogen. Over 2½ years Ryley’s heart tripled in size. He was listed fora heart transplant in August 2021.
As Ryley’s health continued to decline, he was admitted to Nationwide Children’s Hospital. “I can’t say enough good things about Nationwide Children’s, his Cardiomyopathy, Electrophysiology, and now his Transplant team,” says his mom, Elizabeth. His gene mutation is one of approximately 200 cases worldwide. Ryley received his new heart on Valentine’s Day 2022 which also is National Donor Day. He has made remarkable progress. “We are so thankful for our donor, their family and for all of Nationwide Children’s care, expertise and compassion intaking the best care of us.”
If you travel up to Findlay, you might see 16-year-old Ryley riding his bike with friends or helping his family with yard work. The participants who come through his mile are sure to leave it happy and full of energy and inspiration.