- Imagine your child is unable to eat or drink what they need for their body to grow. They cry, choke, vomit or run from the table when you show food or drink. Every few hours you try again, but your child is still unable to eat. Something is wrong. This is Pediatric Feeding Disorder.
- Did you know that Pediatric Feeding Disorder affects more than 1 in every 37 children in the US before the age of 5? It's more prevalent than autism and cerebral palsy.
- Did you know that a diagnostic code for Pediatric Feeding Disorder was just approved in 2020? This matters because, for the first time ever, PFD can be officially diagnosed, validating families' concerns and healthcare professionals' efforts.
- Did you know that our sweet Morgan was treated at the Nationwide Children's Hospital Intensive Feeding program and our feeding team's support saved her life?
Morgan's feeding issues started almost immediately -- she was never a great eater and had a terrible case of Reflux that was initially managed and then returned with a vengeance. We tried to get her treatment at basically every hospital in NE OH -- The Cleveland Clinic, University Hospital and Akron Children's -- but no one seemed to know what was happening. We tried different treatments, therapies, invasive allergy testing... everything. Emily and Mark got up every 90 minutes throughout the night to "dream feed" Morgan through a bottle because she wouldn't eat when she was awake. We tried every pediatric dietician trick imaginable. And she still lost weight. Getting the NG tube that day felt like the worst day of Emily's life - it felt like total defeat. However, it bought us some time to get her growth and development back on track while trying to find a diagnosis and a cure for her challenges.
Emily got to work immediately on trying to find a "pediatric intensive feeding program" that might be able to retrain Morgan to eat and to develop a better relationship and confidence with food. Through many sleepless nights, tears and reliance on our wonderful network, we were led to Nationwide Children's Hospital and never looked back.
We are SO EXCITED for Morgan to have a mile of the Columbus Marathon dedicated to her treatment and to help draw awareness to Pediatric Feeding Disorders. The Columbus Marathon was Emily's first marathon back in the day, so it's coming full circle for our family. :-)
Please consider supporting the most meaningful, wonderful team of people by donating to our cause today. All funds raised through the Morgan Adams' Dream Team will be allocated to our feeding clinic to be used for families that cannot afford items necessary to treat PFD but not covered by insurance.