Ollie's Team is participating in the Nationwide Children's Hospital Marathon and Half Marathon October 19-20, 2024. We are 2024 Children's Champions!

Oliver was diagnosed with a rare genetic disorder early last year (2023) called Potocki-Lupski Syndrome. Genetically speaking, Potocki–Lupski syndrome (PTLS), also known as dup(17)p11.2p11.2 syndrome, trisomy 17p11.2 or duplication 17p11.2 syndrome, is a contiguous gene syndrome involving the microduplication of band 11.2 on the short arm of human chromosome 17 (17p11.2). The duplication was first described as a case study in 1996. In 2000, the first study of the disease was released, and in 2007, enough patients had been gathered to complete a comprehensive study and give it a detailed clinical description. PTLS is named for two researchers involved in the latter phases, Drs. Lorraine Potocki and James R. Lupski of the Baylor College of Medicine.

We only found out about this diagnosis through the help and testing Oliver received through Nationwide Children's Hospital so Ollie's Team is working to raise funds specifically for genetic research at the hospital. We are so excited to give back!

Thank you for your time, your donation, and for being a part of Ollie's Team!

Please consider supporting the most meaningful marathon in the country by making a donation today.