Thank you for visiting my Children's Champion page. My daughter Gianna has SCN8A epilepsy and inspires me every day! ​

SCN8A epilepsy is a terrible disease. Unrelenting seizures even with multiple medications and the ketogenic diet. It has impacted her physical and social development and carries a high risk of premature death. Caring for Gianna is not easy but her smile has taught me so much and she has made me a better person. 

NCH has been with our family on this journey the entire time. We have met so many amazing people who try and help our days have more smiles.

Please consider supporting the most meaningful marathon in the country by making a donation today! 

Luca