Crosby was diagnosed with Lysosomal Acid Lipase Deficiency (LAL-D) when he was 6 months old. We also use the old term Wolman’s Disease. LAL-D is a storage disorder. Crosby’s body is unable to breakdown fat and cholesterol leading to liver disease and failure. He receives an enzyme replacement therapy weekly at our home. There is currently no cure for this disease.
Dr. John Martin at Nationwide Children’s Hospital is trying to change that. He is working on a cure using gene therapy. The research is promising and could be life changing for Crosby and others with the same diagnosis.
The research is new but promising. This fundraiser has been created to help Dr. Martin and his staff as they try to make this therapy a reality. FDA approval is a long and expensive process. This fundraiser will help them continue their research.
Thank you for taking the time to read and share our story.
All donations are tax deductible and will be acknowledged by Nationwide Children’s Foundation.