Patient Champion - Sal LoParo
Meet Sal LoParo, our Patient Champion for the 2017 Great Columbus Duck Race. Sal and his family live in Dublin, OH and he is 11 years old.
In 2015, Sal was diagnosed with two neuromuscular diseases: CMT [Charcot Marie Tooth Disease and CIDP [Chronic inflammatory demyelinating polyneuropathy]. Since then, he has shown just how brave and tough he is, having endured weeks in the hospital, multiple tests and procedures, unending doctor appointments, and physical and occupational therapy sessions. He is still receiving treatments for CIDP and is slowly improving. CMT, though, is a progressive disease with no cure or treatment. Despite his challenges, Sal is blessed with optimism and determination, and inspires everyone around him with his courage. He works hard to fight the devastating effects of these diseases and is determined to raise awareness and support the search for a cure. He loves golf, baseball, swimming, cooking for his family and bike riding.
“The staff at Nationwide Children's has been extremely supportive throughout Sal's diagnosis and treatment. They are knowledgeable, professional and kind. In addition to receiving treatment at the neuromuscular clinic, Sal has also been treated by the rheumatology, cardiology, endocrinology, physical medicine, neurosurgery and hematology departments. We are very fortunate to have such a world-class facility so close to our home.” Carlo, Sal’s father