Welcome to My Personal Page
Thank you for visiting my Children's Champion page. Did you know the purpose of the Nationwide Children's Hospital Columbus Marathon & ½ Marathon is to raise funds to support life-saving research and care? Nationwide Children’s Hospital is committed to treating all children regardless of their family’s ability to pay, which cannot be achieved without community support and generosity. I am participating in the race for this mission and I am determined to help children from all 50 states and more than 60 countries treated at Nationwide Children's Hospital. Won’t you join me in helping kids everywhere?
Please consider supporting the most meaningful marathon in the country by making a donation today.
Who can say an 18 month old baby is their HERO? Well I'm here to tell you I can. February 11th 2017, was the beginning of this story. February 13th was the day that changed everyone that loves Kohlson Edwards lives. I can write all about the emotions I felt that day and the days to come and the months after but nothing will compare to the look on my son and daughter in laws face when their son got out of brain surgery and they spoke to the surgeon as we all waited in the lobby. They really didn't need to say a word you just could tell it was bad news.
Mom, the doctor said he removed the tumor and Kohlson is going to need some chemo. I am a positive person and have faith. So mom mode kicked in and I'm like ok. Let's do this. Tumor is gone, few rounds chemotherapy and he will be out of here.
Kohlson was in PICU attached to so many machines he just seemed lifeless. It was heart wrenching.
Few days after being in the PICU, the Oncology team says we need to meet, and you sit with them and listen. You know you should ask questions but shock takes over. ATRT (ATYPICAL TERIDOID RAPTOID TUMOR) is what Kohlson is diagnosed with. Up until 5 years ago there was no true treatment plan. He will need chemotherapy and radiation treatment. It's probably best to look into sending him out of state to another hospital for the best treatment.
Kohlson went from PICU to Neurology to eventually the Oncology floor.
My son and daughter in law sat in a meeting with 2 doctors and basically had to decide between 2 treatment plans. Can you imagine deciding which plan to save your child. NO parent should ever have to do that especially when there numbers did not look good.
They decided they would travel to Boston for treatment. Well Kohlson had other plans. He needed a shunt put into his head and that meant the 2nd choice of treatment. Kohlson started his journey of chemotherapy at Nationwide Children's Hospital. I secretly think because God knew Kohlson had this family and community that were dropping to their knees praying for him and he needed to be close to all their LOVE.
March 10, 2017 Kohlson started his first round of chemo. There is no need for me to go into detail about side effects of chemo. It's just UGLY. But he fought and he fought. He received his Bone Marrow transplant also. 171 days. That is the number that this child stayed inside. Not outside playing like a little boy should. Not in the dirt. Not playing on the tractors.
Finally Kohlson rang the bell at Nationwide Children's and he got to be home for the first time in 171 days. His journey is not over. When I run this race he will still be in Chicago for his 6 weeks of Proton Radation or if I'm lucky he might be home and well enough to be at the finish line.
I don't run for me. I'm running for KOHLSON. I'm running for Dr. Sribnick who saved his life by removing that tumor and for his honesty. I'm running for Dr. Osario for the treatment plan she helped with for Kohlson that has helped Kohlson to kick cancer. I'm running for every nurse on that Oncology floor (they are angel's) who are by these kids side day and night. I'm running for all the children effected by Pediatric Cancer.
So if you can give $1 or more I am going to raise as much money as I can so children like Kohlson can be kids and be at home with their parents. Any amount helps and I appreciate all the support from everyone. Let's do this...26.2 miles for Team Kohlson!
Thank you so much for your support,
Anita Riley (GiGi)
If you think this page contains objectionable content, please inform the system administrator.